I have several friends who are in the position of being long-term caregivers. The responsibility is tremendous. And the toll it takes on their health is daunting. But for many it is the only option. Whether the affected person has suffered a stroke, has Alzheimer’s, or is afflicted with some other illness, caregivers need all the support they can get. Following is a list of helpful resources for people in that position:
WEBSITES
• www.alz.org/we_can_help_resource_lists.asp
Sponsored by the Alzheimer’s Association. Click on “Caregiver Guides” for a list of publications for caregivers recommended by the Alzheimer’s Association.
• www.caregiver.org/caregiver/jsp/home.jsp
Sponsored by the Family Caregiver Alliance. Click on “publications” or “newsletters” to read articles dealing with topics such as caregiver depression, hiring in-home help, or self-care for caregivers. These facts sheets can also be ordered for $2 each from the Family Caregiver Alliance at 180 Montgomery St., Suite 1100, San Francisco, CA 94104 or by calling 1-800-445-8106.
• www.care-givers.com
This is a website for empowering caregivers, which features articles, suggested readings and a newsletter.
• www.healthinaging.org/public_education/eldercare/1.xml
This site is sponsored by the American Geriatric Association Foundation for Health in Aging. Free Eldercare at Home book covers topics such as pain, dental problems and bone weakness; also provides articles on topics of interest to caregivers and links to resources.
• www.niapublications.org/adear
Provides a list of free publications that can be ordered either online or by
calling 1-800-438-4380.
BOOKS
• The Comfort of Home: An Illustrated Step-By-Step Guide for Caregivers by Maria Meyer (Care Trust Publications)
• The Eldercare Handbook: Difficult Choices, Compassionate Solutions by Stella Henry and Anne Convery (HarperCollins)
• The Fearless Caregiver: How to Get the Best Care for Your Loved One and Still Have a Life of Your Own by Gary Barg (Capital Cares)
• Helping Yourself Help Others: A Book for Caregivers by Rosalyn Carter and Susan K. Golant (Random House)
• Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease by Joanne Koenig Coste (Houghton Mifflin)
• The Resourceful Caregiver: Helping Family Caregivers Help Themselves by National Family Caregivers Association staff
• Surviving Your Spouse’s Chronic Illness by Chris McGonigle, PhD (Henry Holt & Company)
• Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill by Cappy Capossela and Sheila Warnock (Fireside Publishing)
• The 36-Hour Day: A Family Guide to Caring for People with Alzheimer’s Disease, Other Dementias, and Memory Loss in Later Life (4th Edition) by Nancy L. Mace and Peter V. Rabins (Johns Hopkins Press)
MAGAZINES
• Today’s Caregiver Magazine 1-800-829-2734, P.O. Box 21646, Fort Lauderdale, FL 33335, www.caregiver.com
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Disclaimer: The purpose of this weblog is not to dispense medical advice nor in any way is meant to be construed as diagnostic or prescriptive. Always check with your physician before beginning any new program or trying any of the items discussed in the posts that appear on this site.





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